Sorry it took so long to up-date

Ciao Tutti,



First and foremost, we want to thank all of you who have with out hesitation help us, we appreciate. Big, big THANK YOU !!! At the moment we can not thank you personally. Rest assure we know who you are, we will track you down, and get to you in do time!!!
The reason you have not heard from us is because the situation is static. Her medical condition is still a mystery. She goes from feeling a little better, meaning not feeling horrible, to feeling horrible. Today for example Orly has been able to make her eat a little. We take advantage of every minute she is not nauseated to get her to eat some protein, or anything she enjoys, otherwise they said they would halve to feed her with IV and that's really no good!!! She has not been able to get out of bed for at least 3 weeks. She remains full of fluid. Her white blood cells had gone down, and they went back up. They are very high. She is totally lucid, aware of the situation, and when passable maintains a good sense of humor. Up to now she has been incredibly resilient, and much to the surprise of the doctors, and all of us, she keeps on bouncing back!! Like if all of this was not enough we fined our self dealing with one of the worse health care systems in the WORLD. Its really pretty unbelievable. The 2 or 3 times we have had to leave her for 4/5 hr to change guard, there where problems. We know that they do not bring her any food if we are not there, they do not change her IVs if we do not check, and they do not turn her every 3 hours. She already has a bed sour!! That is just under the voice neglect . Then comes the malpractice!!! I will spare you the details. We have made official complaints with health department. We are working to transfer her to San Francisco hoping that the Kaiser facility is better, even just a little better. I have no more minutes I must run to try and take care of paperwork for insurance, transfer, and everything else.

We are hoping to be able to share better news in the near future.


Much love to you all Miriam, Orly, Dylan


P.S

For the Italians, please don't tell me you need this translated??? Too bad !!

Andre', cerco di mandarti un po' di informazioni tecniche che hai chiesto oggi piu tardi. Non ho piu un minuto. Bacioni, Miriam